Author Archive

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

12 Days of Christmas – Day 12

December 2021

On our 12th Day of Christmas, Danielle tells us about her Husband Dave’s diagnosis of adrenomyeloneuropathy (AMN). In 2009, at 28 years old Dave, my rugby playing, police officer husband started walking like he was drunk.  On a holiday to Spain with friends, he suddenly lost the ability to wear flip flops, they would fly off his feet – it was the running joke of the holiday.  Fast forward a few months and he started to have falls, walk with a limp and experience painful spasms in his legs.  This was less funny – although we were still not overly concerned, he was young and apparently healthy, we thought perhaps a trapped nerve or a slipped disk was to blame.

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12 Days of Christmas – Day 11

December 2021

On our 11th Day of Christmas, we hear about Sam’s diagnosis of ALD earlier this year. Sam was diagnosed in March this year with  adrenoleukodystrophy (ALD). His condition has deteriorated rapidly since diagnosis, and he is now completely dependent.

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