One of our beneficiaries has written a wonderful and powerful book of poems about leukodystrophy and motherhood. She wants to share it with other families affected by rare disease to help others by letting them know they aren’t alone.
It was recently featured in America in their disability book review campaign and reviewed by one of their authors: https://www.goodreads.com/book/show/60823951-motherhood
We have some copies available for free within the charity so please get in touch by emailing firstname.lastname@example.org
Please be aware that these poems are written by a mother of a symptomatic child.
You can find the author on socials:
Instagram – @aislingfinnwriter
Facebook – Aisling Finnwriter