News - ALD

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

SwanBio: AMN Press Release

June 2022

SwanBio Presents Design of Innovative Natural History Study Aimed to Evolve Understanding of Adrenomyeloneuropathy and Inform Future Treatments SwanBio have released a press release about their AMN natural history study using wearable technology – with the data collected to provide insights for future first-in-human study of SBT101, AAV-based gene therapy for AMN.

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Important drug update: Addison’s Disease

June 2022

No further manufacturing of injectable Hydrocortisone Sodium Phosphate We have been informed that there will be no further manufacturing of injectable Hydrocortisone Sodium Phosphate by Advanz Pharma until 2023.

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Newborn Screening Study

June 2022

Should ALD be included as part of the newborn screening programme? Are you a man aged 16 and over affected by ALD/AMN? Or their family member/carer?

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SwanBio Therapeutics Press Release: Adrenomyeloneuropathy

May 2022

Gene Therapy for AMN Clinical Trial Update SwanBio Therapeutics have announced additional preclinical data that supports Clinical Advancement of First AAV-Based Gene Therapy for Adrenomyeloneuropathy. SBT101 preclinical studies demonstrate improvement in behavioral and biochemical markers of disease. Further support for dosing strategy for Phase 1/2 study initiating later in 2022.

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