Here are the latest news stories from Alex TLC and about topics we think you'll find useful.
An important month for raising awareness of the condition and the vital research 💗📄 We want to say a huge thank you to Vigil Neuroscience for their vital ongoing research into this condition. To find out more about their research, including their clinical trial for ALSP, visit: https://alspstudy.com/
Articles, Blogs and podcasts 📄🔉 We’d love to hear from you…what leukodystrophy or rare disease articles, blogs and podcasts do you like to follow or would you recommend for our community?
With our community 💙 Thank you to Nick for sharing his ‘Disability and Cruising’ article last week. You can read his story by visiting: Disability & Cruising
Article from The Guardian A much needed change 💙
An article by one of our community members One of our lovely community members, Nick, is affected by AMN which affects his mobility. He has written about his experience going on a Cruise with a disability and he thought it may be helpful for other community members to read his account.
For those affected by rare disease, disability and cancer Rarity Life is an online publication created by Same but Different for those affected by rare disease, disability and cancer. Includes content that is inclusive, focusing on collective experience and celebrating differences.
