News - events

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Online Webinar

June 2022

PRONTO Natural History Study for GM1 and GM2 The CATS Foundation are hosting an online webinar with Cognitant & Azafaros to discuss the upcoming PRONTO Natural History Study for GM1 and GM2 and the development of educational resources.

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Alexander Disease Focus Group

June 2022

Help us shape our resources Are you or a family member affected by Alexander Disease? Join our Alexander Disease Focus group and help shape resources we are creating in the charity.

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We are 18 years old!

June 2022

Today is our 18th Birthday 🥳🎈 We have been supporting individuals and families affected by Leukodystrophies for 18 years.

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