News - Impact reports

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Coordinating Care Report

February 2023

Produced by Genetic Alliance Genetic Alliance’s ‘Coordinating Care: Learning from the experiences of people living with rare conditions’ has been published and is available to view.

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Impact Survey

April 2022

Thank you to everyone who participated! We just wanted to say a massive thank you to everyone who completed our Impact Survey 2022. We really appreciate you taking the time to complete the survey and for your feedback about our services.

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Alex TLC Impact Survey

January 2022

Our Impact Survey 2022 is now ready to complete Anyone who has a connection with Alex TLC through their/their loved one’s leukodystrophy is welcome to take part in the survey. The results of this survey will be vital in helping us to ensure that we are providing you with the best possible services to meet your needs. An overview of the results will be publicly available, but individual responses will remain anonymous.

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