Jeans for Genes Grant
Financial Grant Awarded for Community Weekend A huge thank you to Jeans for Genes for awarding us with a grant towards our Community Weekend in April 💙
Here are the latest news stories from Alex TLC and about topics we think you'll find useful.
Financial Grant Awarded for Community Weekend A huge thank you to Jeans for Genes for awarding us with a grant towards our Community Weekend in April 💙
How can you access sessions? The Counselling Service provides weekly counselling appointments via video call or telephone, free of charge for all our adult community members.
Online Leukodystrophy Conference ELA International Families and Research Meeting is being held on Saturday 15th and Sunday 16th April from 13:00-18:00 (GMT).
An important month for raising awareness of the condition and the vital research 💗📄 We want to say a huge thank you to Vigil Neuroscience for their vital ongoing research into this condition. To find out more about their research, including their clinical trial for ALSP, visit: https://alspstudy.com/
Articles, Blogs and podcasts 📄🔉 We’d love to hear from you…what leukodystrophy or rare disease articles, blogs and podcasts do you like to follow or would you recommend for our community?
On Tuesday 21st March 18:00-19:00 We have an upcoming online community meeting on Tuesday 21st March 18:00-19:00. We hope an evening meeting will mean that community members who have commitments during the day can attend if they’d like to. If there is a specific time or day you’d like a meeting to be held, then please get in touch and let us know.