News - leukodystrophy

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Vigil Neuroscience ALSP Press Release

August 2022

VIGIL NEUROSCIENCE PRESENTS PRECLINICAL DATA ON VGL101 FOR ADULT-ONSET LEUKOENCEPHALOPATHY WITH AXONAL SPHEROIDS AND PIGMENTED GLIA (ALSP) Update from Vigil Neuroscience “Findings from our preclinical studies evaluating TREM2 agonism continue to support the therapeutic potential of our lead clinical product candidate, VGL101 for the treatment of ALSP”.

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Peer Support

July 2022

Have you heard of our Peer Support Programme? We can connect you to others in a similar situation so you can share experiences and gain mutual support. The way we do this is by putting families in contact with each other who have the same condition or with similar symptoms. Putting people in contact with each other by similar symptoms can be especially helpful in the case of the very rare or unnamed leukodystrophies. If you would like to talk to other families then please let us know. The families we support have all said that this peer support is invaluable in helping them to cope and feel less isolated.

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