News - leukodystrophy

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Book of Poems Featured on Radio Show

December 2022

Discussed on Midwest Radio Aisling Finn’s wonderfully powerful book of poems ‘Motherhood: Plot Twist’ was recently featured on Tommy Marren’s show on Midwest radio. This book was written by one of our beneficiaries – it is a wonderful and powerful book of poems about leukodystrophy and motherhood. She wants to share it with other families affected by rare disease to help others by letting them know they aren’t alone.

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Community Weekend Update

November 2022

You will be able to book the event in January 2023 💙 Our Face-to-Face Community Weekend will be on Friday 28th April to Monday 1st May 2023!

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Community Ask

November 2022

Community Ask October Ask the Community Results We wanted to share the feedback we received from our last ‘Ask the Community’.

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