News - leukodystrophy

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Forge Biologics Krabbe Disease Trial

August 2022

Preliminary clinical data on the treatment of first patient Forge Biologics Reports Positive Clinical Data on Brain Development and Motor Function from the RESKUE Novel Phase 1/2 Gene Therapy Trial in Patients with Krabbe Disease.

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Send us your photos

August 2022

Capture in a photo what it’s like for you or a loved one to be living with a leukodystrophy 📸 We want to be able to show the direct impact of the condition on people’s lives 💙 We hope to do this through sharing photos of our community members on our social media, website and in our campaigns.

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Ask Our Community

August 2022

Do you have a husband or partner affected by adult onset ALD? A member of our community has reached out in response to our ask our community posts and wants to be put in touch with other people in a similar situation to herself.

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Ask Our Community

August 2022

Young Man with AMN wants to connect with others A young man from our community has reached out to us. He has AMN and hopes to connect with others who are also affected by AMN. Would you like to connect with him?

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Online Community Meeting

August 2022

Our next online community meeting will be on Friday 23rd September 13:00-14:00. You may be an individual affected by a leukodystrophy, their partner, a family member, carer or a parent of an affected child. Everyone is welcome 💙

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