News - Newborn Screening

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Adrenoleukodystrophy Newborn Screening in the Netherlands (SCAN Study): The X-Factor

June 2020

Dutch scientists develop algorithm to overcome the logistical problems of initiating boys-only new born screening for ALD. This is a ground breaking development and will be a first for gender specific new born screening. This is an important step forward in adding ALD to the new born screening programme in the Netherlands and also excellent news for other countries, like the UK, in their own battles.

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Britt Ekland – Alex TLC Patron

January 2020

A huge welcome to our new Patron, the incredible Britt Ekland “It’s a huge boost for us to have such a high profile celebrity coming on board to help raise awareness of leukodystrophy. We’re very much looking forward to working with Britt as our newest patron, and applaud her willingness to use her personal story in the fight to bring newborn screening for ALD to the UK.”Sara Hunt – CEO

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