ELA Families and Researchers Meeting
Online Leukodystrophy Conference ELA International Families and Research Meeting is being held on Saturday 15th and Sunday 16th April from 13:00-18:00 (GMT).
Here are the latest news stories from Alex TLC and about topics we think you'll find useful.
Online Leukodystrophy Conference ELA International Families and Research Meeting is being held on Saturday 15th and Sunday 16th April from 13:00-18:00 (GMT).
Press Release from Forge Biologics Forge Biologics Reports Positive FBX-101 Clinical Updates for Patients with Krabbe Disease
ALSP Webinar Available Vigil Neuroscience ALSP Community Webinar recording is available to view.
From Rare Revolution Magazine Rare Revolution Magazine have published a wonderfully insightful Impact Report. ‘The impact of RARE disease on sibling experience’ aims to give a voice to rare siblings by sharing personal insights of young people.
Sponsored by Vigil Neuroscience The webinar is on Thursday 26th January from 17:30-18:30 (GMT). It is going to be held on zoom and is free to attend.
Our monthly research summary is available to view Our Research Summary for January 2023 is ready to view.