Her welcome message for our community 💙
Introducing our wonderful new Research Analyst, Kristina, who has recently joined the team. She wrote a small statement she would like to share with our community below:
Available to access for our community members
Thanks to the The National Lottery Community Fund we’ve recently employed a counsellor to work with members of our community.
How are you keeping warm this winter? ❄️
We hope you are managing to keep warm during this cold time of year. For our Community Ask for January we would love for you to share with us ways you are using to keep warm.
Providing counselling for our community.
Introducing our fantastic new counsellor, Louise, who has recently joined the team. She wrote a small statement she would like to share with our community below. More information on how to access counselling sessions will be coming soon.
Help the development of the IWMD Registry
There is an opportunity to be involved in the pilot testing of the registry for the NHS England Inherited White Matter Disorder Service (IWMD).
Don’t forget about our Grant Programme 💙
We provide small financial grants for families and individuals affected by leukodystrophy.