News - Services

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Introducing our Research Analyst, Kristina

February 2023

Her welcome message for our community 💙 Introducing our wonderful new Research Analyst, Kristina, who has recently joined the team. She wrote a small statement she would like to share with our community below:

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Counselling Appointments

January 2023

Available to access for our community members Thanks to the The National Lottery Community Fund we’ve recently employed a counsellor to work with members of our community.

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Ask the Community for January

January 2023

How are you keeping warm this winter? ❄️ We hope you are managing to keep warm during this cold time of year. For our Community Ask for January we would love for you to share with us ways you are using to keep warm.

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Introducing our Counsellor, Louise

January 2023

Providing counselling for our community. Introducing our fantastic new counsellor, Louise, who has recently joined the team. She wrote a small statement she would like to share with our community below. More information on how to access counselling sessions will be coming soon.

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NHS England IWMD Registry Pilot

November 2022

Help the development of the IWMD Registry There is an opportunity to be involved in the pilot testing of the registry for the NHS England Inherited White Matter Disorder Service (IWMD).

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Alex TLC Grant Programme

October 2022

Don’t forget about our Grant Programme 💙 We provide small financial grants for families and individuals affected by leukodystrophy.

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