How can we help you?
Our Support Services are here to support individuals & families affected by a leukodystrophy. It could be you’ve recently been diagnosed or you need advice about managing your current symptoms. Please do reach out, we are here for everyone 💙
Have you used our website?
We are currently reviewing our website and your feedback is essential in making sure we make the changes needed.
Do you know about our Grant Programme?
We provide small financial grants for families and individuals affected by leukodystrophy.
Monday 9th – Sunday 15th May 2022
This week is Mental Health Awareness Week. The theme is loneliness – raising awareness of the impact on our mental health and practical steps we can take to address it. On social media each day we have been posting about what the charity is able to do to help with anyone in our community who is feeling lonely. Please see the summary below with posts that went out each day:
Your feedback is important to us!
We are reviewing our website and we’d love to hear about your experiences using it.
£30million of new government funding for short breaks for disabled children in England
The government has announced that over the next three years it will provide an additional £30 million for short breaks for families with disabled children in England.