News - Uncategorised

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Leukodystrophy Awareness month

September 2021

September is #LeukodystrophyAwareness month. Please join us in spreading awareness throughout September. We will be posting a different Leukodystrophy each day on our socials.

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Alex TLC Research Summary

September 2021

Research Summary August 2021 We have just put together our latest research summary, which includes information about recent and existing Leukodystrophy studies. The studies are separated into categories based on the type of Leukodystrophy or topic.

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Patient-focused drug development meeting for CTX

July 2021

Patient-focused drug development meeting for CTX For the first time, people living with CTX and those who care for and about them are invited to share their experiences with the people who research, develop, and regulate treatments for CTX.

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