Tickets now available for the Digital Community Weekend 2021
Dear Alex TLC FamilySara & Karen are both very excited to tell you that they are now underway preparing for our second Digital Community Weekend on 20th & 21st November 2021.
Here are the latest news stories from Alex TLC and about topics we think you'll find useful.
Dear Alex TLC FamilySara & Karen are both very excited to tell you that they are now underway preparing for our second Digital Community Weekend on 20th & 21st November 2021.
September is #LeukodystrophyAwareness month. Please join us in spreading awareness throughout September. We will be posting a different Leukodystrophy each day on our socials.
Research Summary August 2021 We have just put together our latest research summary, which includes information about recent and existing Leukodystrophy studies. The studies are separated into categories based on the type of Leukodystrophy or topic.
We are back again for this years BigGive Christmas Challenge and we need your help so that we can double donations to our charity during the campaign (30th Nov – 7th Dec).
Patient-focused drug development meeting for CTX For the first time, people living with CTX and those who care for and about them are invited to share their experiences with the people who research, develop, and regulate treatments for CTX.