New NICE guideline on social work with adults experiencing complex needs
NICE Talks is the podcast from UK’s National Institute of Health and Care Excellence (NICE). Brining the stories behind their work to improve outcomes for people using the NHS and other public health and social care services through evidence-based guidance.
RARE Revolution have produced a useful resource
RARE Revolution have compiled a Mental Health Services Directory. Coping with mental health issues can be exhausting and often overwhelming. Even with a strong support network around you, sometimes you need to reach out for that extra help, support and guiding hand. RARE Revolution have compiled a directory of just some of the services available who can hopefully shine some light on the darkness.
The government is looking to reform disabled children’s services through a set of proposed policies in the ‘SEND Green Paper’. The government’s plans contain several worrying proposals that could further weaken the rights of families with disabled children and make it even harder for them to access support.
Resource regarding challenges and burdens faced
Rare Revolution Magazine have produced a resource about Rare Disease long-term caregiving. It is to raise awareness of the challenges and burdens faced by Rare Disease Caregivers with gentle reminders to take care of themselves.
To support families
Trybes Heath – a mental health platform designed to support families affected by long term conditions – are offering six families the opportunity to join a eight week mental health pilot programme free of charge.
Genomics England Survey
Which conditions should be screened for for as part of the Newborn Genomes Programme?
Have your say by completing Genomics England survey by Tuesday 14th June💬
The survey is to test the wording of some of the draft principles that will guide Genomics England in choosing the conditions to screen for in the newborn babies’ genomes.
To find out more❓: Genomics England Website
To access the survey 📝 : Newborn Genomes Programme Survey