Childhood Cerebral Adrenoleukodystrophy (CCALD) Research Study

To understand parents’ experiences of having a child diagnosed with CCALD

Researchers from Sheffield Hallam University are conducting research in collaboration with Alex TLC to understand parents’ experiences of having a child diagnosed with Childhood Cerebral Adrenoleukodystrophy (CCALD. Please read the researchers letter below about how you get involved in the study.

Do you have any questions? Would you like an opportunity to meet and speak to the Researchers at our General Catch Up? Contact suzanne@alextlc.org

Alex - The Leukodystrophy Charity