Services With Symptoms

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Speech and Language Therapy/Tube Feeding

April 2019

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6c3b41ee88{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6c3b41ee88 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6c3b41ee88 p{margin:0} SPEECH AND LANGUAGE THERAPY Speech and language therapists, sometimes referred to as SALT, help with both communication and feeding difficulties.

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Respite

April 2019

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6c363f2504{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6c363f2504 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6c363f2504 p{margin:0} Caring for someone with a leukodystrophy can be stressful and can put a strain on other family relationships, even if care support within the home has been arranged. Respite care provides some relief for this, but often comes with feelings of guilt and failure. Arranging respite care does not mean that you cannot or do not want to look after your loved one. This can be important to your mental health as a carer and family member: in order to provide the best possible care and loving home life for your loved one, you need to make sure you are getting the support that you need and are able to look after yourself. It is possible that you will have an allocated number of nights’ respite included in your care package. Alex TLC can help with this, discussing whether respite care will work for you and helping to find appropriate services.

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Reproductive Options

April 2019

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6c22f0e11f{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6c22f0e11f h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6c22f0e11f p{margin:0} What is PGD? PGD is available to couples that are at risk of having a child with a specific genetic or chromosome disorder. It prevents the birth of an affected child by testing an embryo before it is implanted in the uterus (womb).

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Play Specialist

April 2019

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6c1fb3b684{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6c1fb3b684 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6c1fb3b684 p{margin:0} Normally based on children’s wards or in children’s hospitals, a play specialist can help with simple medical procedures, blood tests and taking medication. They can explain medical procedures and equipment to children, suggest alternative play ideas for children with disabilities and provide distraction therapy to support children having blood taken.

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Physiotherapy

April 2019

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6c1bf96127{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6c1bf96127 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6c1bf96127 p{margin:0} Many of the conditions covered by Alex TLC will affect mobility in some way. Physiotherapy can help with this, improving physical activity and reducing risk of injury. Your physiotherapist may prescribe an exercise programme which should be followed carefully to maximise its effectiveness. For many, this is an important part of a daily routine to improve mobility and gain or regain motor skills.

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Orthotics

April 2019

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6c17c233ed{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6c17c233ed h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6c17c233ed p{margin:0} Braces, splints and other items such as specialised footwear and insoles can be a great help to those with leukodystrophies which affect movement and mobility. These aids, provided by orthotic services, can reduce pain and make life more manageable. Your GP, physiotherapist or occupational therapist will be able to refer you to the orthotics service.

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