You can help people and families living with a leukodystrophy by sharing news of our work, campaigns, surveys and fundraising events.
Every action helps, whether it’s handing out leaflets, following us on social media, or inviting us to speak at your event.
With your help we can reach more people with our important messages.
Raise awareness of Alex TLC in your area by distributing leaflets locally. Please contact us to request some information leaflets and we’ll arrange to deliver these to you. Or you can download a pdf here.
Invite us to speak at your event
We want to raise awareness of leukodystrophies so people are better informed about these rare disorders. We can provide a speaker for your event, group or organisation to spread the word about rare diseases and Alex TLC. Tell us about your event.
Connect with us on social media
If you haven’t already, please follow us on Twitter, Instagram and like our Facebook page, and share our posts with your family and friends. With your help we can reach more people with our messages.
Share your story
Reading stories of people with similar experiences can be incredibly comforting and help reduce the isolation felt by families living with leukodystrophies. If you feel ready to tell your personal or family story in a case study, please get in touch.
Support our campaigns
Beneficiaries can help raise awareness and support our future development by taking part in our latest surveys.
Be inspired by our supporters
Take a look at our news pages and read about some of the amazing fundraising and awareness events organised by our supporters. Sign up to our newsletter for all the latest information and events.