Leukodystrophies often have similar symptoms and outcomes. Families sometimes don’t discover this until they start to talk. Bringing individuals and families together for mutual support is one of our primary objectives.
By joining together with friends, family or colleagues and holding a SimilariTEA party we want to get people talking about their own similarities.
It’s a great excuse to invite your friends over for tea, cake and a catch up and raise money for a brilliant cause at the same time.
Host your own SimilariTEA Party and help us make a difference.
How it works
Simply host a tea party for your friends, family or colleagues in return for a donation to Alex TLC. The host’s role is to encourage people to talk and find out more about each other. The aim is for every person to discover things they have in common. It could be anything from a favourite cake to personal grooming preferences!We also want your party guests to learn some important facts about the rare diseases we support. Our free Party Pack includes SimilariTEA cards to help you to introduce these into the conversation in a fun way.
When you’ve found your match (someone you have something in common with), share it with us on Facebook and twitter.
Request your free Party Pack
We’ll supply you with everything you need to hold your tea party, including:
Download your SimilariTEA Party Pack now or contact us to request a hard copy.