Volunteering and job vacancies

Our inspirational team is the beating heart of Alex TLC. Becoming a volunteer is a highly rewarding way to show your support for our charity.

We are always on the lookout for people with skills and experience in retail, office administration, communications and fundraising. You don’t need to have prior experience of working in the charity sector to get involved, just a warm heart and the drive to make a difference.

Take a look at our current vacancies and volunteering opportunities.

Alex - The Leukodystrophy Charity

Job vacancies

Job Title: Part-time Financial Controller

Salary: £30-40,000 FTE dependent on experience

Reporting to (Job Title): Chief Executive Officer

Direct reports: Accounts Manager

Budget Responsibility (direct): Organisation

Revenue Responsibility (direct): Budgeted annual income

Date of issue: 15th May 2020



Alex, The Leukodystrophy Charity (Alex TLC) are a small, independent rare disease charity competing for essential resources within an extremely competitive arena. Ensuring we have accurate and comprehensive financial reporting for both senior management and our Board of Trustees is essential for the development of our short, medium and long-term strategies and budgets.

Like many other small charities, we have grown organically from an informal support group to the recognised voice for genetic leukodystrophy patients and their families. Formerly ALD Life, an organisation supporting the most prevalent leukodystrophy, last year we expanded our support services to help those with all genetic leukodystrophy, increasing both our growth potential and workload.

Leukodystrophies are a very rare group of inherited disorders, therefore we acknowledge that support will always be limited. We work towards diversity of income through our charity shop business (5 sites), corporate partnership, voluntary income and grant making trusts.

As we grow, robust and comprehensive financial reporting alongside professional analysis of our financial strategies will be essential for our continued success.

The Financial Controller will be responsible for our financial strategy and accounts management alongside assisting with development of our overall strategic direction and effectiveness, working closely with the Board of Trustees, Chief Executive Officer and Accounts Manager.


This role follows on from the previous holder who was instrumental in overhauling previous methodologies and improving analysis of our financial status and our capacity to increase and improve profitability. The Financial Controller will be responsible for providing oversight and guidance to the Accounts Manager within our current system and continued development of innovative approaches to ensure financial effectiveness, efficiency and sustainability, upskilling staff where necessary.

In line with the effects on the charity sector as a whole, the Covid-19 pandemic has impacted on the income capacity of Alex TLC in a number of ways. Robust finance reporting and oversight has allowed staff to be flexible enough to continue to deliver services in different ways, and enthused development of innovative strategies to encourage and maintain long term support. Overall control of an ever changing financial landscape will be key to sustaining income levels and maintaining our charitable and fundraising activities.


· Oversee accounts function

· Ensure accurate information is input into Sage and that month end and year end procedures are followed for reliable and consistent reporting.

· Annual review and adherence to organisations’ financial strategy;

· Continual development and review of comprehensive reporting systems for Board and CEO;

· Effectively lead, manage and develop staff to deliver objectives;

· Oversee management of payroll;

· Set, develop and monitor organisational, departmental and project budgets and forecasts;

· Ensure sustainability and use financial resources effectively;

· Manage agreed budgets with minimal variance;

· Build reserve levels to required minimum.


· Ensure confidentiality at all times, only releasing confidential financial information with consent from the Chief Executive Officer

· Ensure compliance with General Data Protection Regulations and the organisation’s Privacy Policy.

· Declare any Conflicts of Interest through completion of the organisation’s Declaration of Interest form

· Ensure adherence to Alex TLC’s policies and Staff Handbook.

· Undertake any other duties that are reasonable and are commensurate with the role.


The role is part time, office or home based and flexible, initially at 16 hours per week with scope for regular review.


Alex TLC Head Office, 45 Peckham High Street, London SE15 5EB and/or home based.




· Qualified accountant (ACA, ACCA or CIMA);


· Educated to degree level or equivalent experience;



· Management of accounts function including payroll and budgeting;

· Production of accurate and reliable monthly management reports;

· Good working knowledge of SAGE.


· Sound understanding of charitable accounting.

· Experience as a Financial Controller or Manager.



· Attention to detail;

· Self-motivated;

· Articulate;

· Calm;

· Methodical;

· Resourceful;

· Excellent organisational skills;

· Excellent supervision skills;

· Willingness to learn about leukodystrophies and the work of Alex TLC.


· Understanding of the challenges faced by small charities within the current sector.



Digital Retail Volunteer

Reporting to: Shop Manager/Retail Area Manager

Main Activities & Responsibilities:

Using the voluntary working practices, policies, procedures and values set by Alex TLC, work with paid staff to ensure the charity shop business runs at full potential.

This role is intended for individuals experienced in setting up digital operations using a variety of online selling platforms such as e-Bay, Music Magpie and with strong skills in computing.

The Digital Retail Operations Manager will be responsible for developing and implementing a strategy to utilise online selling platforms and optimise retail profits. Further responsibilities include processing Gift Aid stock, digital customer service, ensuring systems are up to date and accurate, items are processed accurately and training of staff and volunteers.

Individuals will be expected to work to the high standards expected at all Alex TLC shop premises according to the requests of the Shop Manager, as a team member, taking full responsibility for all shop duties undertaken.

Participation in all training and legislative checks required by Alex TLC, statutory and specific to role.

Customer Responsibilities (internal & external)

Maintain excellent levels of customer service (remembering customer service extends to colleagues and service providers, as well as customers), going above and beyond where possible.

Technical Responsibilities

Expert knowledge of the safe and correct use of all equipment used in their day to day tasks.

Other features of the Job

Lunch & travel expenses are provided following a minimum time commitment of six hours.

Hours of work are according to those agreed between yourself and the Shop Manager.

Opportunity to attend the Alex TLC Community Weekend and meet sufferers of leukodystrophy and their families. Volunteers assist in the running of activities during the Weekend and attend the social events included.

Locations – South East London Alex TLC charity shop premises.

Person Specification:


• GCSE, ‘O’ Level or equivalent Mathematics and English Language

• A level or equivalent computing qualification or training


• charity or other retail
• online selling platforms
• Basic understanding of leukodystrophy and the work of Alex TLC

Work based Competencies

• Excellent : computer, writing, numerical ability & organisational skills

Behavioural Competencies 

• Motivated, honest, committed, organised & the ability to work in a team

• Enthusiastic, Articulate, Calm under pressure, Methodical,  Resourceful with commercial acumen.

How to apply?

Please send a CV detailing your experience, contact details and two references and send it to info@alextlc.org.


Retail Assistant:

As a volunteer Retail Assistant, you will play an important role in the smooth running of Alex TLC’s charity shops in south east London and will help to sort donations, serve customers and deal with enquiries.

Who can volunteer at Alex TLC?

Anyone aged 14 or above, who is looking for a new challenge, can volunteer. You must have a desire to learn new skills, want to meet new people and be willing to work as a team. You do not need to have any experience or qualifications as we will train you.

What can Alex TLC offer you?

We believe in supporting volunteers to fulfil their potential and will help you to learn and develop through continuous hands-on training. We will also enable you:

  • To acquire transferable skills such as customer services and team-working.
  • To improve your numeracy and literacy skills.
  • To develop interpersonal and communications skills so that you grow in confidence.
  • To enter a new environment, meet new people and make friends. Alex TLC will also pay travel and lunch expenses (your Alex TLC retail manager will give you the details).

What will you be doing?

You will support shop staff to meet Alex TLC’s daily retail target by:

  • Using the till to serve customers and by answering queries.
  • Preparing and sorting donations for sale – this includes washing bric-a-brac, steaming clothes and carrying out quality control checks on donations.
  • Displaying/restocking items for sale and ensuring that the shop window displays are regularly updated.

How to apply?

Please send a CV detailing your experience, contact details and two references and send it to info@alextlc.org.

If you have any queries about volunteering, please telephone 020 7701 2628.

Alex - The Leukodystrophy Charity

Volunteer Grant Fundraiser

We are looking for volunteers, preferably with experience of grant fundraising, to:

  • research potential grant making trusts for relevance to our specific objectives
  • send applications using existing templates
  • update our systems with details of applications

This is a wonderful opportunity to develop your existing skills within a unique arena, learn about the difficulties facing those with rare disease, and give vital and tangible support to sufferers of leukodystrophy. We need help to give hope and support to people affected by leukodystrophy – could you be that help?


Candidates should be able to demonstrate the following:

  • an interest in ALD Life and the work that we do
  • basic understanding of the complexities of leukodystrophy
  • excellent written skills
  • excellent computer skills, particularly Microsoft Word and Excel
  • excellent organisational and administrative skills

We are flexible and the role can be home based or at our Peckham, London SE15 office.

Alex - The Leukodystrophy Charity

Become a Trustee

Our Trustees play an important role in governance and decision making at Alex TLC. We are looking for Trustees with experience of leukodystrophy to ensure we are always mindful of the experiences and needs of those we are here to support.

DIRECT REPORT: Works closely with the Chair, Trustee Board and Chief Executive Officer
BACKGROUND: Knowledge/experience of voluntary, charity or public sector (preferred but not essential); commitment to the activities, development and promotion of Alex TLC.

Role Summary

• Ensure that the organisation complies with its governing document, organisation law, and any other
relevant legislation or regulations
• Ensure that the organisation pursues its objectives as defined in its governing document
• Ensure the organisation applies its resources exclusively in pursuance of its objectives, i.e. the organisation
must not spend money on activities which are not included in its own objectives, no matter how worthwhile
or charitable those activities are
• Contribute actively to the Board of Trustees’ role in giving firm strategic direction to the organisation,
reviewing and agreeing organisational policies, goals, targets and performance measurement
• Safeguard the good name and values of the organisation
• Represent the company at functions and meetings as appropriate
• Declare any conflict of interest while carrying out the duties of a trustee
• Collectively responsible for the actions of the organisation and other trustees
• Ensure the effective and efficient administration of the organisation
• Abide by the equal opportunities policy
• Ensure the financial stability of the organisation
• Protect and manage the property of the organisation
• Ensure the proper investment of the organisation’s funds
• Make sure the organisation is properly insured against all reasonable liabilities
• Appoint and support the CEO and monitor their performance
• In addition to the above statutory duties of all trustees, each trustee should use any specific knowledge or experience to help the Board of Trustees reach sound decisions. This will involve scrutiny of board papers, leading discussions, focusing on key issues, and providing advice and guidance requested on new initiatives, or other issues relevant to the area of the organisation’s work in which the trustee has special expertise
• Attend meetings, and read papers in advance of meetings
• Participate in other tasks as arise from time to time, such as interviewing new staff, helping with fundraising
• Keep informed about the activities of the organisation and wider issues which affect its work

Person Specification

• Integrity
• Commitment to the organisation and its objectives
• Understanding and acceptance of the legal duties, responsibilities and liabilities of trusteeship
• Willingness to devote the necessary time and effort to their duties as a trustee
• Strategic vision
• Good, independent judgement
• Ability to think creatively
• Willingness to speak their mind
• Ability to work effectively as a member of a team

Time & Personal Commitment

• The Board meets at least 4 times a year and trustees are expected to be available 2 times in a year.
• In addition to Board Meetings, other contact – usually electronic or by telephone – will be necessary.
• There will also be a requirement before and after meetings to have read any relevant documentation and
action any points necessary.
• Potential trustees should understand that the reputation of Alex TLC is paramount to success. Therefore, we
are unable to accept applications from individuals who have been involved in incidents attracting either
negative or controversial publicity.

Alex - The Leukodystrophy Charity

Work Experience Programme

Anyone aged 14 and over can apply for work experience in one of our charity shops or office team. Please get in touch to apply.

If you’re under 16 you’ll need to ask your parent or guardian to complete a consent form.

Alex - The Leukodystrophy Charity

For more information and to apply for any of our volunteer roles, please contact us.