Community Weekend

The Alex TLC Community Weekend Conference brings together leukodystrophy sufferers and their families, alongside doctors, researchers and scientists from around the world to discuss how leukodystrophies affect them.

Alex - The Leukodystrophy Charity

Concentrating on the many similar symptoms and problems faced, it gives sufferers and their families the chance to talk freely, meet and support each other alongside Alex TLC staff and volunteers. Our focus is on activities designed to put attendees at ease and encourage interaction, such as an ice-breaker quiz, children’s activities for all ages and abilities, workshops on condition management and self-help, research and treatment updates. It also gives medical professionals the opportunity to hear directly from those affected and presents a rare opportunity to progress research ideas and best practices for treatment.

Community Weekend 2018 in pictures

2018 Community Weekend Impact Report