Research and Clinical Trials

Please see our individual condition pages or our news section for up to date information on research and clinical trials.

We endeavour to keep our website as up to date as possible but please be aware that the information is correct at the time of publication. It may be that there has been an update for a particular clinical trial or research study since, so please take this into consideration.

If you are aware of a research paper or clinical trial for a leukodystrophy we have not featured or you have any questions, then please contact us.

Alex - The Leukodystrophy Charity

Research Summaries

We produce monthly research summaries which contains recent leukodystrophy research and clinical trials. The summary includes article summaries and direct links to websites and articles.

Click on the links to access each individual research summary:

November 2022

October 2022

September 2022

August 2022

July 2022

June 2022

May 2022

April 2022

March 2022

February 2022

January 2022

December 2021

November 2021

October 2021

September 2021

August 2021

July 2021

December 2020 – March 2021

 

Please be aware these summaries are produced voluntarily by Biomedical Science students and are their interpretations of the information and findings. Alex TLC assumes no responsibility or liability for any errors or omissions in the content of these summaries. The information contained in the research summaries is provided on an “as is” basis with no guarantees of completeness, accuracy, usefulness, or timeliness.

Please note the information was correct at the time of publishing, there may have been further updates and developments since, therefore please take into account the date the research summary was produced.

If you are unsure of any of the details within the summaries, please refer to the actual articles or contact info@alextlc.org

 

Alex - The Leukodystrophy Charity

LEUKOLABS

LEUKOLABS are a key partner of Alex TLC. They are a UK founded network to promote collaboration in leukodystrophy research by bringing together researchers and clinicians to promote translational leukodystrophy research with patient-focused outcomes.

Vision

To unite researchers and clinicians working on leukodystrophies, promote collaborative projects and develop therapies.

Mission Statements

  1. Build a national and international community through partnership with leukodystrophy stakeholders: national health services, patient networks, research communities and industry sector.
  2. Boost leukodystrophy research by developing mechanisms to coordinate and prioritise next steps in research undertakings and attract funding.
  3. Promote translational leukodystrophy research with patient-focused outcomes.

To find out more about their work, visit: LEUKOLABS website

Alex - The Leukodystrophy Charity