Mental Health & Rare Disease Paper
‘Mental health care for rare disease in the UK – recommendations from a quantitative survey and multi‑stakeholder workshop’
Over 1,000 people took part in Genetic Alliance’s survey about the impact of living with a rare condition. It included mental health, experiences of support and recommendations for healthcare professionals and rare disease services.
To read the recommendations and full paper, visit: https://geneticalliance.org.uk/gauk-news/news/mental-health-and-rare-conditions/