New Born Screening for Adrenoleukodystrophy – UK NSC decision announced
The National Screening Committee have said no to ALD Life’s proposal to add ALD to the list of conditions screened for at birth. Naturally, this is a very disappointing result, but it does mean that ALD is on their radar and will come up for review again in 2019. Working with UK ALD and AMN specialists, plans are in place to appeal the decision and we will keep you posted on progress. Needless-to-say we will not be giving up!