Here are the latest news stories from Alex TLC and about topics we think you'll find useful.
Sponsored by Vigil Neuroscience The webinar is on Thursday 26th January from 17:30-18:30 (GMT). It is going to be held on zoom and is free to attend.
Sara and Karen will be presenting at the conference Sara, Our CEO, and Karen, Our Support Services Manager, are attending the BPNA (British Paediatric Neurology Association) Annual Conference in Edinburgh this week! They will be presenting about our involvement as the patient representative in the development of the IWMD service and registry
Our monthly research summary is available to view Our Research Summary for January 2023 is ready to view.
Share your ideas and feedback about our weekend 💭 Would like to be part of our Community Weekend Planning Committee?
Trial website and study posting information now live Vigil clinical ALSP trial: A Study of VGL101 in Patients With Adult-Onset Leukoencephalopathy With Axonal Spheroids and Pigmented Glia.