News

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

NHS England IWMD Registry Pilot

November 2022

Help the development of the IWMD Registry There is an opportunity to be involved in the pilot testing of the registry for the NHS England Inherited White Matter Disorder Service (IWMD).

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LEUKOLABS

November 2022

One of our Key Partners LEUKOLABS is a UK founded network to promote collaboration in leukodystrophy research by bringing together researchers and clinicians to promote translational leukodystrophy research with patient-focused outcomes. They aim to build a united community and maximise the chances of fostering collaborative projects in leukodystrophy research.

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