Albie

“Tuesday 6th September 2022, our little boy Albie was born 3 and a half weeks early, weighing a tiny 5lb 14oz.”

Joey

“I have learned that no one knows your child better than you, and if something doesn’t feel right then listen to your instinct.”

Donna, Lee & Shaun

“…both of her sons have survived into adulthood against the odds”

Nick

“I am determined to make every day count”

Myles

“He has a big smile and a warm heart. I’ll never stop advocating for his needs.”

Sofia

“…we are focusing on bringing her as much joy as possible”

Steven

“Steven has become an active member of the Alex TLC community…”

Max

“…he finds comfort in talking to those who can relate to his struggles”

Lawrence

“…the life of one child would be remembered by changing the lives of many”

Reigan

“…if it wasn’t for the charity I wouldn’t be here today”

Elisa

“…stay strong, stay united and live life the best you can”

Deirdre

Tom is independent and able to manage his Addison’s Disease; the only indicator of the terminal ALD diagnosis he once received.