Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Fiona Willis, Fundraising Assistant

May 2022

Fiona’s mum is currently undergoing genetic tests for adult Leukodystrophy, and Alex TLC have provided support and guidance to them both, on what was originally a very difficult and confusing journey.

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Professor Wiebke Arlt

March 2022

Professor Wiebke Arlt is a Consultant Endocrinologist at the Queen Elizabeth Hospital and the William Withering Chair of Medicine and Director of the Institute of Metabolism and Systems Research (IMSR) at the University of Birmingham, UK. She obtained her MD at the University of Cologne, following by clinical specialist training in Endocrinology & Diabetes at the University of Wuerzburg and postdoctoral training in paediatric and molecular endocrinology at the University of California at San Francisco, CA, USA, before joining the University of Birmingham as an MRC Senior Clinical Fellow in 2004. Professor Arlt’s research focusses on the role of steroids in health and disease, with a translational focus on adrenal insufficiency, adrenal tumours and polycystic ovary syndrome. This closely links to her clinical work as a consultant providing specialist services for patients with adrenal and gonadal disorders. She has published >200 original research articles and has received several major awards.

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Nahed Sarig, Trustee

November 2021

Nahed works for M&G Investments and  is responsible for M&G’s asset management efforts to deliver outcome-oriented strategies, client specific mandates and flexible investment partnerships. Specifically, Nahed is responsible for leading the investment strategy design, modelling  and the development and continuous refinement of the M&G investment solutions modelling framework including both top-down (asset allocation) and bottom-up(security specific strategies). ​

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Dr Gavin Bowen-Metcalf, Trustee

November 2021

Dr Gavin Bowen-Metcalf is a Cancer Biologist and Lecturer of Biomedical Sciences at Anglia Ruskin University, Cambridge, with experience in the fields of molecular oncology, genomics and histopathology.

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Olivia Bostock, Trustee

November 2021

Olivia is studying business at University of Birmingham and has a long history with Alex TLC through her father, our previous Chair, sadly deceased from adrenoleukodystrophy. She is also a carrier and proactive in issues related to carriers.

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