Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Kristina Backlund, Research Analyst

February 2023

Kristina joined the charity in February 2023, she has a Bachelor of Science in Bioscience: Molecular Biodesign and a Master of Medical Science with the main field of study in Forensic Science. She is passionate about the study of genetics and helping others. She is looking forward to applying her experience and knowledge in science and research to further the awareness, knowledge, understanding, and communication within the research field of leukodystrophies and Alex TLC in her role as Research Analyst to help patients and the community.

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Louise O’Connell, Counsellor

January 2023

Louise joined the charity in January 2023, she is a BACP (British Association for Counselling and Psychotherapy) accredited counsellor and psychotherapist, clinical supervisor, and an accredited energy psychotherapist, who has 13  years’ experience of working in both the NHS and Private practice. Her background includes 18 years’ experience of specialist oncology and palliative care nursing.

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Fiona Willis, Fundraising Assistant

May 2022

Fiona’s mum has a type of leukodystrophy called ALSP, and Alex TLC have provided support and guidance to them both, on what was originally a very difficult and confusing journey.

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Professor Wiebke Arlt

March 2022

Professor Wiebke Arlt is a Consultant Endocrinologist at the Queen Elizabeth Hospital and the William Withering Chair of Medicine and Director of the Institute of Metabolism and Systems Research (IMSR) at the University of Birmingham, UK. She obtained her MD at the University of Cologne, following by clinical specialist training in Endocrinology & Diabetes at the University of Wuerzburg and postdoctoral training in paediatric and molecular endocrinology at the University of California at San Francisco, CA, USA, before joining the University of Birmingham as an MRC Senior Clinical Fellow in 2004. Professor Arlt’s research focusses on the role of steroids in health and disease, with a translational focus on adrenal insufficiency, adrenal tumours and polycystic ovary syndrome. This closely links to her clinical work as a consultant providing specialist services for patients with adrenal and gonadal disorders. She has published >200 original research articles and has received several major awards.

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Nahed Sarig, Trustee

November 2021

Nahed works for M&G Investments and  is responsible for M&G’s asset management efforts to deliver outcome-oriented strategies, client specific mandates and flexible investment partnerships. Specifically, Nahed is responsible for leading the investment strategy design, modelling  and the development and continuous refinement of the M&G investment solutions modelling framework including both top-down (asset allocation) and bottom-up(security specific strategies). ​

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