September is…. ๐Ÿ’™ Leukodystrophy Awareness Month ๐Ÿ’™

Get involved and help #turnseptemberblue

Find out the ways you can get involved this September to help support Leukodystrophy Awareness Month.


Help us to create a month of Leukodystrophy Awareness
Share a little bit about your life with leukodystrophy so we can spread the word.

Share 2 posts a week based on our themes below on the specified dates each week, remember to tag us in your posts and use the hashtags:

#alextlc #leukodystrophy #turnseptemberblue

You can also raise awareness by adding our Leukodystrophy Awareness Month Social Media Frame to your profile picture.

Please click on the link to download our frame: Leukodystrophy Awareness Month | Twibbonize


‘Wear it, share it’ this September

Here is how to get involved:

1) Buy merchandise from our online shop Alex TLC Online Shop

2) Take a photo of yourself using or wearing the item

3) Share your photo on socials, tag us and use the hashtags:

#alextlc #leukodystrophy #wearitshareit

Please remember for us to be able to see and share your posts, that you need to change your privacy settings to public for each post.

Want to get involved but don’t have a social media account?
You can still help to raise awareness by sending your responses and photos to us and we can post them directly onto our social media channels. Please send them to


Enter our Leukodystrophy Awareness Month Raffle

This leukodystrophy awareness month, we are hosting a raffle to raise vital funds and help us continue to support those affected by leukodystrophies. The draw will take place on Saturday 1st October 2022. Winners will be notified by email.

View the great prizes to be won and buy your raffle tickets by clicking here:ย Alex TLC Raffle


Donate to our Fundraising Page

Leukodystrophy Awareness Month is a time for everyone affected by a leukodystrophy to come together and raise awareness about these devastating rare conditions. Alex TLC is the only charity in the UK that provides invaluable support for anyone with a leukodystrophy, their families, and carers. Your support this Leukodystrophy Awareness Month will help us to make a huge difference to the lives of those affected.

Find out how to donate by visiting:

Alex TLC Fundraising Page


Alex - The Leukodystrophy Charity