The CONCORD study
Co-ordinated care for people affected by rare diseases: the CONCORD mixed-methods study
NIHR have published The CONCORD study. This study found evidence of a lack of co-ordinated care for people affected by rare diseases, which could have negative impacts on the physical and mental health of patients and families.
To read the study, visit: https://www.journalslibrary.nihr.ac.uk/hsdr/LNZZ5321/#/full-report