Upcoming Beneficiary Catch Ups

Topic based General Catch Ups on Zoom

We have several topic based general catch ups coming up over the next couple of months. From Alex TLC, Karen Harrison, Support Services Manager, and Suzanne Gosney, Beneficiary Engagement Officer, will be attending. These meetings will be held on Zoom in a group setting with other Alex TLC beneficiaries. They provide an opportunity to ask questions, share concerns and as a group offer feedback and support to each other.

If you are interested in attending or have any questions, please email suzanne@alextlc.org

 

Friday 28th January 11:00-12:00: Female Carriers
This meeting is being held for female carriers. Please be aware that this meeting may have individuals with a variety of symptoms and some with more advanced symptoms of leukodystrophy than others.

 

Wednesday 23rd February 11:00-12:00: Symptomatic Adults
This meeting is being held for symptomatic adults. Please be aware that this meeting may have individuals with a variety of symptoms and some with more advanced symptoms of leukodystrophy than others. Family and carers of symptomatic adults are welcome to join.

 

Wednesday 30th March 11:00-12:00: Parents of Symptomatic Children
This meeting is being held for parents of symptomatic children. Please be aware that this meeting may have parents with children whom have a variety of symptoms and some with more advanced symptoms of leukodystrophy than others.

Alex - The Leukodystrophy Charity