Voice of the Patient

Cerebrotendinous Xanthomatosis (CTX) Report

CTX Alliance have produced ‘Voice of the Patient’. This is a report from Patient-Focused Drug Development Meeting on Cerebrotendinous Xanthomatosis (CTX)

To view: CTX Voice of Patient Report

To find out more about CTX Alliance: https://ctxalliance.org/

There will be CTX specific content at the ULF family conference which is being held in June. To find out more about the conference and sessions available: https://ulf.org/news/family-conference/

Alex - The Leukodystrophy Charity