A diagnosis of one of these conditions, for yourself or a loved one, can seem overwhelming. Even with friends and family to support you, it can be difficult to identify what help you need. Many of the symptoms and consequences of leukodystrophy can be managed with the right support. Alex TLC can provide support with these services including helping you to understand what is available.
This information is intended to assist leukodystrophy patients and their families in the management of their condition. All information and links are based around UK services – our Support Service Team are happy to help with individual enquiries both from the UK and abroad.