Home - Alex - The Leukodystrophy Charity

We are Alex,
The Leukodystrophy Charity (Alex TLC)

Alex TLC is a trusted and experienced organisation offering support and information for all those affected by a genetic leukodystrophy. Formerly ALD Life, an internationally recognised centre of excellence for people affected by adrenoleukodystrophy and adrenomyeloneuropathy, the charity was established in 2004.

Due to popular demand, we extended our services to support all leukodystrophies in 2019 and became Alex, The Leukodystrophy Charity.

Information

Learn about the conditions, their symptoms, available services and treatments.

Support

Living with a leukodystrophy can be challenging, but help is available.
Find out how our services can help you cope.

Charity Shops

Our award-winning charity shop business helps raise vital funds and awareness, as well as providing volunteering opportunities and jobs for local people.

HealthUnlocked

Our online forum brings people coping with leukodystrophy together to support each other, whether they are caring for a loved one or coping with their own condition

Alex TLC is hiring…

We are looking for a Fundraising Manager to join our team! Alex TLC is an independent charity for people with rare, neurodegenerative conditions – genetic leukodystrophies. This role will increase our capacity to support beneficiaries and reduce the health inequalities they often face.

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Pledges Needed for this years Big Give Christmas Challenge.

We are back again for this years BigGive Christmas Challenge and we need your help so that we can double donations to our charity during the campaign (30th Nov – 7th Dec).

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Professionals

Are you a professional seeking support for a patient or client with leukodystrophy? We’re here to help.