We are Alex,
The Leukodystrophy Charity (Alex TLC)
Alex TLC is a trusted and experienced organisation offering support and information for all those affected by a genetic leukodystrophy. Formerly ALD Life, an internationally recognised centre of excellence for people affected by adrenoleukodystrophy and adrenomyeloneuropathy, the charity was established in 2004.
Due to popular demand, we extended our services to support all leukodystrophies in 2019 and became Alex, The Leukodystrophy Charity.
Living with a leukodystrophy can be challenging, but help is available.
Find out how our services can help you cope.
Our award-winning charity shop business helps raise vital funds and awareness, as well as providing volunteering opportunities and jobs for local people.
Our online forum brings people coping with leukodystrophy together to support each other, whether they are caring for a loved one or coping with their own condition
A cross-community rare disease awareness week to enable rare disease communities to share messages for one another so that they can reach a wider audience Dazzle4Rare was established in July of 2016 with a simple goal of signal boosting rare and undiagnosed community messages. Every August, like, share, and retweet any of the posts on our and other rare disease charity social media channels. Share information about rare diseases, your own story, or educational links and information for everyone to learn more – all using the hashtag #Dazzle4Rare
Are you a professional seeking support for a patient or client with leukodystrophy? We’re here to help.