Home - Alex - The Leukodystrophy Charity

We are Alex,
The Leukodystrophy Charity (Alex TLC)

Alex TLC is a trusted and experienced organisation offering support and information for all those affected by leukodystrophy. Formerly ALD Life, an internationally recognised centre of excellence for people affected by adrenoleukodystrophy and adrenomyeloneuropathy, the charity was established in 2004.

Due to popular demand, we extended our services to support all leukodystrophies in 2019 and became Alex, The Leukodystrophy Charity.

Information

Learn about the conditions, their symptoms, available services and treatments.

Support

Living with a leukodystrophy can be challenging, but help is available.
Find out how our services can help you cope.

Charity Shops

Our award-winning charity shop business helps raise vital funds and awareness, as well as providing volunteering opportunities and jobs for local people.

HealthUnlocked

Our online forum brings people coping with leukodystrophy together to support each other, whether they are caring for a loved one or coping with their own condition

Willow Special Treats

Treat Boxes for young adults with life threatening condition or rare disease Willow Foundation are a national charity working with seriously ill young adults aged 16 to 40 to fulfil uplifting and unforgettable Special Days. They provide ‘Special Treats’ for young adults living with a life-threatening condition or rare disease. They are personalised gift boxes filled with luxury items with a different theme for each box, including pampering, food/drink, family fun and many other ways to give a positive boost to those that need it most.

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Research Summary

November 2022 Our Research Summary for November is now ready to review.

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Professionals

Are you a professional seeking support for a patient or client with leukodystrophy? We’re here to help.