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Alex - The Leukodystrophy Charity

We are Alex,
The Leukodystrophy Charity (Alex TLC)

Alex TLC is a trusted and experienced organisation offering support and information for all those affected by leukodystrophy. Formerly ALD Life, an internationally recognised centre of excellence for people affected by adrenoleukodystrophy and adrenomyeloneuropathy, the charity was established in 2004.

Due to popular demand, we extended our services to support all leukodystrophies in 2019 and became Alex, The Leukodystrophy Charity.


Learn about the conditions, their symptoms, available services and treatments.

Alex - The Leukodystrophy Charity


Living with a leukodystrophy can be challenging, but help is available.
Find out how our services can help you cope.

Alex - The Leukodystrophy Charity

Charity Shops

Our award-winning charity shop business helps raise vital funds and awareness, as well as providing volunteering opportunities and jobs for local people.

Alex - The Leukodystrophy Charity


Are you a professional seeking support for a patient or client with leukodystrophy? We’re here to help.