Home - Alex - The Leukodystrophy Charity

We are Alex,
The Leukodystrophy Charity (Alex TLC)

Alex TLC is a trusted and experienced organisation offering support and information for all those affected by a genetic leukodystrophy. Formerly ALD Life, an internationally recognised centre of excellence for people affected by adrenoleukodystrophy and adrenomyeloneuropathy, the charity was established in 2004.

Due to popular demand, we extended our services to support all leukodystrophies in 2019 and became Alex, The Leukodystrophy Charity.

Information

Learn about the conditions, their symptoms, available services and treatments.

Support

Living with a leukodystrophy can be challenging, but help is available.
Find out how our services can help you cope.

Charity Shops

Our award-winning charity shop business helps raise vital funds and awareness, as well as providing volunteering opportunities and jobs for local people.

HealthUnlocked

Our online forum brings people coping with leukodystrophy together to support each other, whether they are caring for a loved one or coping with their own condition

Co-producing Research Webinar

Co-producing research with the Cambridge Patient Led Research Hub Webinar The Cambridge Patient Led Research Hub (PLRH) are holding an online webinar that highlights how they work with patient charities and organisations to co-produce quality research to benefit patients. Three Rare Disease charities ( PKD Charity, Ring 20 Research and Support UK CIO and Lupus UK’s Cambridge Support Group ) will share their experience of working the PLRH.

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COVID-19 and IMDs-Prevalence Poll

Help Metabolic Support UK by completing their poll

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Professionals

Are you a professional seeking support for a patient or client with leukodystrophy? We’re here to help.