Home - Alex - The Leukodystrophy Charity

We are Alex,
The Leukodystrophy Charity (Alex TLC)

Alex TLC is a trusted and experienced organisation offering support and information for all those affected by a genetic leukodystrophy. Formerly ALD Life, an internationally recognised centre of excellence for people affected by adrenoleukodystrophy and adrenomyeloneuropathy, the charity was established in 2004.

Due to popular demand, we extended our services to support all leukodystrophies in 2019 and became Alex, The Leukodystrophy Charity.

Information

Learn about the conditions, their symptoms, available services and treatments.

Support

Living with a leukodystrophy can be challenging, but help is available.
Find out how our services can help you cope.

Charity Shops

Our award-winning charity shop business helps raise vital funds and awareness, as well as providing volunteering opportunities and jobs for local people.

HealthUnlocked

Our online forum brings people coping with leukodystrophy together to support each other, whether they are caring for a loved one or coping with their own condition

NICE Talks Podcast

New NICE guideline on social work with adults experiencing complex needs NICE Talks is the podcast from UK’s National Institute of Health and Care Excellence (NICE). Brining the stories behind their work to improve outcomes for people using the NHS and other public health and social care services through evidence-based guidance.

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Mental Health Services Directory

RARE Revolution have produced a useful resource RARE Revolution have compiled a Mental Health Services Directory. Coping with mental health issues can be exhausting and often overwhelming. Even with a strong support network around you, sometimes you need to reach out for that extra help, support and guiding hand. RARE Revolution have compiled a directory of just some of the services available who can hopefully shine some light on the darkness.

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Professionals

Are you a professional seeking support for a patient or client with leukodystrophy? We’re here to help.