Home - Alex - The Leukodystrophy Charity

We are Alex,
The Leukodystrophy Charity (Alex TLC)

Alex TLC is a trusted and experienced organisation offering support and information for all those affected by a genetic leukodystrophy. Formerly ALD Life, an internationally recognised centre of excellence for people affected by adrenoleukodystrophy and adrenomyeloneuropathy, the charity was established in 2004.

Due to popular demand, we extended our services to support all leukodystrophies in 2019 and became Alex, The Leukodystrophy Charity.

Information

Learn about the conditions, their symptoms, available services and treatments.

Support

Living with a leukodystrophy can be challenging, but help is available.
Find out how our services can help you cope.

Shops

Our award-winning charity shop business helps raise vital funds and awareness, as well as providing volunteering opportunities and jobs for local people.

HealthUnlocked

Our online forum brings people coping with leukodystrophy together to support each other, whether they are caring for a loved one or coping with their own condition

Register Now for the 2020 Virtual Family Conference.

The ULF is hosting streamed webinars June 25 – 27 on topics we could have featured at our in-person event. Even though the pandemic is keeping us from meeting face to face this year, the ULF is dedicated to providing quality educational content to the leukodystrophy community. This year, the ULF will offer a series of live webinars, pre-recorded videos, and releasing additional text-based resources over the three days.

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COVID-19 :New UK steroid guidance issued

Advice for patients who take replacement steroids (hydrocortisone, prednisolone, dexamethasone or plenadren) for pituitary/adrenal insufficiency.

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Professionals

Are you a professional seeking support for a patient or client with leukodystrophy? We’re here to help.