We are Alex,
The Leukodystrophy Charity (Alex TLC)
Alex TLC is a trusted and experienced organisation offering support and information for all those affected by a genetic leukodystrophy. Formerly ALD Life, an internationally recognised centre of excellence for people affected by adrenoleukodystrophy and adrenomyeloneuropathy, the charity was established in 2004.
Due to popular demand, we extended our services to support all leukodystrophies in 2019 and became Alex, The Leukodystrophy Charity.
Living with a leukodystrophy can be challenging, but help is available.
Find out how our services can help you cope.
Our award-winning charity shop business helps raise vital funds and awareness, as well as providing volunteering opportunities and jobs for local people.
Our online forum brings people coping with leukodystrophy together to support each other, whether they are caring for a loved one or coping with their own condition
COVID-19 :New UK steroid guidance issued
Advice for patients who take replacement steroids (hydrocortisone, prednisolone, dexamethasone or plenadren) for pituitary/adrenal insufficiency.
Novel Coronavirus (COVID-19) – 11/03/2020
With Coronavirus on everyone’s minds, Alex TLC would like to share some practical information and advice specifically for ALD and AMN patients with adrenal insufficiency or Addison’s Disease, kindly provided by our friends, the Addison’s Disease Self Help Group.
Are you a professional seeking support for a patient or client with leukodystrophy? We’re here to help.