News

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Online Community Meeting

October 2022

Come and join our online community meeting on Tuesday 25th October 11:00-12:00💙 This meeting provides a friendly space. It is held on zoom and everyone from our community is welcome to attend.

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Covid Vaccination and Flu Jab Reminder

October 2022

Flu Jabs are now due and Covid Vaccination Autumn Booster Available We just wanted to remind our community that if you have a yearly flu jab, it will be due now. Please contact your GP for further information.

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Community Weekend 2023

September 2022

An exciting announcement for the last day of Leukodystrophy Awareness Month We will be having our next in person Community Weekend on Friday 28th April to Monday 1st May 2023.

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RAREfest22

September 2022

In person event showcasing ground-breaking rare disease research and technology Gather your friends and family to join us in attending Cambridge Rare Disease Network’s RAREfest event. We are proud to be media partners for this vibrant and vital event that puts those affected by Rare Diseases front and centre alongside talks, demos, art and films of pioneering research, life-changing tech and real life stories! Head here  for more info and FREE tickets #science #technology #RareDisease #PatientVoice #advocacy

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