Presentations from the event are available to view on our YouTube channel
We recorded the presentations from our Community Weekend which was held at the end of April. They are now available to view on our YouTube channel. We have created a playlist with all the available presentations from the weekend called Alex TLC Community Weekend 2023.
Save the Date for YAYA Foundation Family and Scientific Conference
YAYA Foundation Family and Scientific Conference
Our Support Services Manager will be presenting at the event
United Leukodystrophy Foundation Family Conference on 23rd and 24th June. Our Support Services Manager, Karen Harrison, will be presenting at the event with Dr. Noemie Hamilton from Leukolabs.
Minoryx initating next phase in trial
“Minoryx gains FDA approval to initiate a Phase 3 clinical trial in patients with cerebral Adrenoleukodystrophy. CALYX will enroll 40 adult male X-ALD patients with progressive cALD defined by the presence of gadolinium enhancing brain lesions.”
Do you have MLD or care for someone with MLD?
We want to share information about a new study that involves caregivers of people with metachromatic leukodystrophy (MLD) can get involved in.
Come join us for our June meeting
Our next online community meeting will be on