Endorse the newborn screening patient charter
On 23 July 2019 Genetic Alliance shared their patient charter on newborn screening with the All Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions.
Here are the latest news stories from Alex TLC and about topics we think you'll find useful.
On 23 July 2019 Genetic Alliance shared their patient charter on newborn screening with the All Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions.
View our July newsletter – We’ve had plenty to shout about since our re-launch.
The BIMDG psychologists group work with individuals and families affected by inherited metabolic disorders (IMD).
On 15th May 2019, ALD relaunched as Alex, The Leukodystrophy Charity!
