We are Alex,
The Leukodystrophy Charity (Alex TLC)
Alex TLC is a trusted and experienced organisation offering support and information for all those affected by leukodystrophy. Formerly ALD Life, an internationally recognised centre of excellence for people affected by adrenoleukodystrophy and adrenomyeloneuropathy, the charity was established in 2004.
Due to popular demand, we extended our services to support all leukodystrophies in 2019 and became Alex, The Leukodystrophy Charity.
Living with a leukodystrophy can be challenging, but help is available.
Find out how our services can help you cope.
Our award-winning charity shop business helps raise vital funds and awareness, as well as providing volunteering opportunities and jobs for local people.
You can access peer support in our online community. We have our own Facebook Group called Alex TLC Community. It is a space for individuals affected by leukodystrophy and their family members, friends, and carers to have conversations. We hope that by having our own dedicated group on Facebook, it will ensure more of our community are able to be involved in conversations and discussions. The group is private, as a charity we will moderate who joins and we have set certain rules, so members know what to expect in the group.
Please click here to join: Alex TLC Community Group
Newborn Screening Article
By Sara Hunt, Our CEO Our CEO, Sara’s, article ‘Why Teddi’s MLD gene therapy story should provoke immediate change for newborn screening’ has been featured in National Health Executive Magazine.Read full story >
Are you a professional seeking support for a patient or client with leukodystrophy? We’re here to help.