2nd October 2026
Online community meeting
Our next online meeting will be taking place on Thursday 22nd October 11:30-13:00 (BST – UK time).
Stay up to date
2nd October 2026
Our next online meeting will be taking place on Thursday 22nd October 11:30-13:00 (BST – UK time).
30th September 2026
This month we will be sharing about our charity impact report, donating to our community weekend, FreeWills Month and treatment updates for MLD & Alexander Disease!
28th September 2026
Our Research Summary includes information about recent leukodystrophy research and clinical trials, including article summaries and direct links to websites and articles.
18th September 2026
A community member would like to know if anyone else has had to cope with having an arm in a sling for a number of weeks.
15th September 2026
Our steering group meeting will be taking place next week on Thursday 24th September from 18:00-19:00 on Zoom.
8th September 2026
7th September 2026
2nd September 2026
We are pleased to announce that our Charity Impact Report 2026 is now available to view.
28th August 2026
Our next online meeting will be taking place on Tuesday 22nd September 11:30-13:00 (BST – UK time). Our general monthly online community meetings are open to anyone affected by leukodystrophy.
28th August 2026
A research team at King’s College London carrying out a study looking at how social care support could be improved for children with life-limiting conditions and their families.
28th August 2026
This month we will be sharing about leukodystrophy awareness month, the newest member of our team, wear it blue and joining our community weekend virtually!
27th August 2026
Our Research Summary includes information about recent leukodystrophy research and clinical trials, including article summaries and direct links to websites and articles.