Coronavirus (COVID-19)

Any concerns or questions please get in contact

For peer support and information on Health Unlocked Forums please access our Peer Support page

Alex - The Leukodystrophy Charity

Looking after your Mental Health


The Covid pandemic has affected how we lives our lives, including accessing services and how we socialise with others. This has taken a huge toll on our mental health and it’s vital that we seek support when need it. It’s important that we recognise the additional challenges that individuals affected by Leukodystrophies and their families face during this already difficult time. The Covid pandemic has impacted how many health care and support services are accessed and has restricted the support many individuals receive from family and friends.

There are organisations there to help support your mental health during this challenging time. Please find information below:


Samaritans 116 123

Saneline 0300 304 7000


Useful links:

Mental Health Matters

Provide a helpline providing emotional support, advice and guidance. Please click link for phone numbers for different geographical areas

Mental Health Foundation

Guidance to help mental health during the coronavirus outbreak

Every Mind Matters

Providing information and advice about how to look after your mental health

Together for Short Lives

Download the Booklet PDF here

Together for Short lives have put together a Self-help booklet for parents with seriously ill children.

Alex - The Leukodystrophy Charity