Coronavirus (COVID-19)
Any concerns or questions please get in contact
For peer support and information on Health Unlocked Forums please access our Peer Support page
Covid Resource & Information
Covid Update October 2022: Autumn Booster and Flu Jab Reminder
Covid Update July 2022: All over-50s to be offered COVID-19 booster and flu jab
Covid Updates January 2022: England to return to Plan A
Covid Update November 2021: Face Masks Mandatory
Who can get a coronavirus (COVID-19) vaccine – update
Info about Vaccines for kids aged 12-18 ( * contact your GP if you haven’t heard by the end of August)
Guidance on protecting people who are clinically extremely vulnerable from COVID-19
HEREDITARY METABOLIC DISORDERS AND COVID-19 VACCINATION
Coronavirus and Inherited Metabolic Disorder Webinar Series
Valuing Vaccines– The Association of the British Pharmaceutical Industry Presentations
ADSHG Coronavirus Vulnerable Adult Advice
Covid-19 Vaccine Communication Handbook
Free Vitamin D for clinically extremely vulnerable people
Shielding advice – Tier 4 Areas
Updated Shielding Guidance – Oct 2020
Children’s Activities – Boredom Busters
Guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19
£37 million to support children with complex needs
Covid-19 & Paediatric Neurology
Addisons Disease Update : Managing medication & COVID-19
Advice for patients / parents / guardians
Looking after your Mental Health
The Covid pandemic has affected how we lives our lives, including accessing services and how we socialise with others. This has taken a huge toll on our mental health and it’s vital that we seek support when need it. It’s important that we recognise the additional challenges that individuals affected by Leukodystrophies and their families face during this already difficult time. The Covid pandemic has impacted how many health care and support services are accessed and has restricted the support many individuals receive from family and friends.
There are organisations there to help support your mental health during this challenging time. Please find information below:
Helplines
Samaritans 116 123
Saneline 0300 304 7000
Useful links:
Mental Health Matters
www.mhm.org.uk/helpline-webchat
Provide a helpline providing emotional support, advice and guidance. Please click link for phone numbers for different geographical areas
Mental Health Foundation
www.mentalhealth.org.uk/coronavirus
Guidance to help mental health during the coronavirus outbreak
Every Mind Matters
www.nhs.uk/oneyou/every-mind-matters
Providing information and advice about how to look after your mental health
Together for Short Lives
Together for Short lives have put together a Self-help booklet for parents with seriously ill children.